Horizons in Hemophilia, September 2020
HoG Plays a Big Role in NHF Bleeding Disorders Conference
| September 9, 2020
If you were not able to attend the National Hemophilia Foundation’s virtual 72nd Bleeding Disorders Conference, August 1-8, you can still register to view the presentations. More than 50 sessions for consumers and chapters are available through September 30. The healthcare professional sessions are not available. More...
FDA Delays Roll Out of First Hemophilia Gene Therapy
| September 9, 2020
Unexpectedly, the U.S. Food and Drug Administration did not approve BioMarin’s gene therapy for severe hemophilia A in August. The FDA is requiring the company to conduct more research to determine how long the therapy’s results last. The FDA is asking for two years of follow-up data which will not be complete until November 2021. More...
NHF Announces New Online Forum for African Americans with Bleeding Disorders
| September 9, 2020
Last month, the National Hemophilia Foundation created the Bleeding Disorders and Black Communities, a private online forum hosted by UK-based HealthUnlocked. NHF discovered the need for an online community for Black and African American people with bleeding disorders while holding listening sessions last year. They were trying to understand barriers to care that affect joint health but found much more. More...
A Big Thank You to Our Facebook Birthday Fundraisers
| September 9, 2020
What may seem like a small act can help so many lives. That’s why this month we want to start recognizing those who choose Hemophilia of Georgia for their Facebook birthday fundraisers. There are more than 750,000 charities listed in the Facebook fundraiser system, and we are ever so grateful for those who select Hemophilia of Georgia. More...
Thank You for a Hopeful Hops Event
| September 9, 2020
Thank you to everyone who joined us for our virtual Hops for Hemophilia livestream on Saturday, September 12. It was a great time for all, and we were able to raise $9,776 for research for a cure! More...
Parker Duncan Exceeded His $3,000 Fundraising Goal
| September 9, 2020
If you didn’t see it on our social media, Parker Duncan and his family exceeded their goal of $3,000 for their COVID-19 relief fundraiser. Parker normally raises funds for Camp Wannaklot. This year he chose to raise funds for Georgia inherited bleeding disorder families who were financially impacted by COVID-19. More...