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Georgia Capitol Building

Georgia General Assembly Recognizes and Commends Hemophilia of Georgia

By Jeff Cornett RN MSN, Vice President of Research and Public Policy

Published February 10, 2021

 

On January 28, 2021, the Georgia Senate issued a resolution to recognize and commend Hemophilia of Georgia, its staff, and volunteers. The resolution was sponsored by Senators John Albers (Roswell), Jeff Mullis (Chickamauga), Brian Strickland (McDonough), Ben Watson (Savannah), Steve Gooch (Dahlonega), and Blake Tillery (Vidalia). Due to COVID-19 restrictions, Hemophilia of Georgia will not have an exhibit day at the Capitol this year.

Here is the resolution text, which is also available on the Georgia General Assembly website.

A Resolution recognizing and commending Hemophilia of Georgia; and for other purposes.  WHEREAS, Hemophilia of Georgia is a nonprofit organization based in Sandy Springs, Georgia, that provides services and support to Georgians who have hemophilia, von Willebrand disease, and other inherited bleeding disorders; and WHEREAS, Hemophilia of Georgia began its work in the state in 1973; and WHEREAS, Hemophilia of Georgia employs pharmacists, nurses, and social workers to carry out its work and mission; and WHEREAS, Hemophilia of Georgia operates successful pharmacies that have received accreditation from the Accreditation Commission for Health Care Incorporated (ACHC) and the Utilization Review Accreditation Commission Incorporated (URAC), demonstrating a commitment to high-quality standards of care; and WHEREAS, Hemophilia of Georgia is the only organization of its type in the state offering medication, outreach nursing and social work services, clinical and research funding, and educational and support activities to these individuals to enhance their care and quality of life; and  WHEREAS, Hemophilia of Georgia provides children with these inherited bleeding disorders with the ability to live more normal lives, including opportunities to attend summer camp at Camp Wannaklot; and WHEREAS, Hemophilia of Georgia also publishes an award-winning newsletter for clients and their families to keep up-to-date with advances on treatment; produces Protocols for the Treatment of Hemophilia and von Willebrand Disease for physicians and other healthcare providers; offers financial support for hemophilia treatment centers throughout Georgia to ensure that they are fully staffed and equipped; and invests in critical research for these inherited bleeding disorders and their associated complications; and WHEREAS, Hemophilia of Georgia works with the state's Hemophilia Advisory Board, serving as an advisor on the standards of care and treatment for individuals with hemophilia and other inherited bleeding disorders; and WHEREAS, Hemophilia of Georgia partners with many entities, including St. Jude Children's Research Hospital and the Hemophilia of Georgia Center for Bleeding & Clotting Disorders of Emory, for research to find a cure for hemophilia; and WHEREAS, Hemophilia of Georgia's reach is beyond the borders of Georgia as a supporter of the World Federation of Hemophilia, providing technical support to hemophilia organizations in developing countries; and WHEREAS, Hemophilia of Georgia serves as a trusted resource to many healthcare providers and insurers, providing each with training on bleeding disorders, including appropriate care and treatment, and the organization is recognized nationally and internationally for its work.  NOW, THEREFORE, BE IT RESOLVED BY THE SENATE that the members of this body recognize Hemophilia of Georgia, its staff, and its volunteers and commend their work on behalf of those individuals with hemophilia and other inherited bleeding disorders in this state, throughout our nation, and around the world. BE IT FURTHER RESOLVED that the Secretary of the Senate is authorized and directed to make an appropriate copy of this resolution available for distribution to Hemophilia of Georgia.