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8607 Roberts Drive, Suite 150 Sandy Springs, GA 30350-2237

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World Hemophilia Day

Published April 9, 2014

 

By Amy Bretherton, Director of Marketing & Communications

World Hemophilia Day is April 17th. Each year this day is observed around the world to increase awareness of hemophilia and other inherited bleeding disorders. There are 6.9 million people globally who have a bleeding disorder. 75 percent of them aren't aware that they have a bleeding disorder. In the United States, there are about 20,000 people (predominantly males) living with hemophilia. Hemophilia is extremely costly to treat. The average annual costs of treatments for an individual with severe hemophilia in the United States can be $300,000 or up to $1 million if an inhibitor develops.

This year the theme is Speak Out. Create Change.  It is our opportunity to raise awareness about where we have been as a community, where we want to go, and that together we can close this wide gap in care. This is a critical effort with an ultimate goal of ensuring better diagnosis and access to care for the millions who have a rare bleeding disorder and yet remain without treatment.

What can you do to help?

Make All the Difference in the World by texting the word “World” to 80888 and make a $10 donation that will be billed to your cell phone to support humanitarian aid that brings life-saving medicine and the knowledge to use it to the most remote parts of the world. Available on US cell phones only. Please take a moment and click on the link below to watch the “Powerful Thumbs” PSA on YouTube:  https://youtu.be/JRDIdEcbC8k

  • Connect with the global online community at www.facebook.com/wfhemophilia and leave a message of support.
     
  • Tell one person you know about hemophilia and the global bleeding disorder community and ask that person to donate.
     
  • Educate your community, school or church about bleeding disorders and the need for care and treatment around the world.
     
  • Finally, be thankful that you live in a country and state that has access to care and treatment and honor a caregiver at www.wfh.org with a gift in that person’s name.

Thank you for celebrating World Hemophilia Day and helping to support global care.