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World Federation of Hemophilia
Distribution of Donated Factor
Hemophilia of Georgia supports the World Federation of Hemophilia by coordinating shipment of donated clotting factor to countries around the world. In the past few years, millions of units of soon-to-expire factor have been sorted, packaged and shipped to World Federation of Hemophilia chapters in dozens of countries, as shown in the illustration below:
World Hemophilia Day
The World Federation of Hemophilia designated April 17, 2010 as World Hemophilia Day. This year's theme celebrates the whole bleeding disorders community – people with hemophilia and symptomatic carriers, women and men with von Willebrand disease, as well as those with rarer factor deficiencies, and inherited platelet disorders. To learn more about World Hemophilia Day, please view the video and other materials on www.wfh.org. Hemophilia of Georgia also encourages everyone to consider making a donation to the World Federation of Hemophilia.
Twinning Program
Hemophilia of Georgia also participates in the WFH's Twinning Program which pairs treatment centers and hemophilia patient organizations in emerging countries with corresponding centers and organizations in developed countries to help share knowledge, experience and best practices. Hemophilia of Georgia works with the Sociedad Hondureña de Hemofilia in Honduras. In 2008 the WFH honored Hemophilia of Georgia and the Sociedad Hondureña de Hemofilia as Twins of the Year. Specifically, the chapters were commended for improving data collection and increasing the registry of people who have hemophilia in Honduras; creating a regional chapter in northeast Honduras; training forty nurses in self-infusion; creating educational materials and raising awareness; and organizing a Global Feast fundraiser that brought in over $3000.
Physician Education
The World Federation of Hemophilia has adopted the Protocols for the Treatment of Hemophilia and von Willebrand Disease, published by HoG. This booklet provides detailed information on proper treatment for physicians and other medical providers.
